You just got some news that you semi expected but honestly weren’t ready for and were in a bit of denial about. So unlike you to look into what it could mean but this may have been your best step! You will move forward with grace and treat him as a kid first and his diagnosis is just something to contend with in a somewhat secondary capacity wherever you can. The thing you need to know, I’m 4 years into this wonderful “journey” that is mothering that beautiful boy you see bef

I know right now you feel like the ground has shifted under your feet. The words you just heard, Down syndrome , sound heavier than you imagined even though you were expecting it.  Your mind is spinning with questions. You begin to wonder if you are strong enough, if your child will be okay, if life will ever feel the same again. Breathe Julie. You are going to be okay. Darcy is going to be more than okay. The days ahead will not always be easy. You will encounter stares, unk

My memories of what I went through 26 years ago giving birth to my lovely, adorable son Dylan.  He was born on due date, 15 hours of labour nature birth. The only medical issue at birth was he was jaundice and put under lights for the first few hours after birth. At a later stage we found he had a hole in his heart that closed over six months later, two lots of pneumonia and three lots of grommets. As I couldn’t breast feed Dylan, he was bottled fed, so we were allowed to go

It's one of the calls we all dread after receiving the news that you're pregnant, and you received it shortly after your 12 week...

Do you remember that moment when your wife, Gayle, discovered she was pregnant? Absolutely.  We were both stunned — almost upset — and I...

You didn’t just survive. You transformed. I’m so incredibly proud of who we turn out to be.

Dear Kylie, Here you are at your 19 week morphology scan. The scan you were terrified about, because it was at that stage in your last...

Musa He was born on 14 April 2017 via emergency c section when the doctors struggled to find his heartbeat. Shortly after birth the...

Toby, is the youngest brother of three and refuses to be left behind, watching him shadow & copy his brothers & get out of his comfort...

Arlee Grace was born at 33w+6d in Sydney at Nepean Hospital. She spent 6 weeks in the Nepean NICU before being transferred back home to...

Bella is an almost 5year old little girl with Down syndrome, she loves to sing, dance and she loves life, she brings our whole family so...

While the words, setting and journey may differ, every parent of an individual with Down syndrome experiences this moment; the moment you...

Dear Tyronne, You just found out your son has Down Syndrome. You are overwhelmed with everything as it is and finding out your son has a...

To Jen and Pen, I know you’re scared. I’m sorry that you were told the news at your doctors office that your baby had “Mongoloid”. That...

Dear Me, I’ll never forget the day like it was yesterday... It was Monday the 20th of April 2020 and I had been asked to do a...

So you have just been given some news which has left you feeling pretty devastated and in shock. Your whole world now feels like it has...

Hey you, You did it! After a seemingly endless uneasy labour she is here, safe and sound sleeping sweetly in your arms unaware of all the...

To Claire, Me, when I first received the diagnosis that my unborn son would be born with Down syndrome. Hi I’m not going to ask how you...

Dear Quyen, She is curious. She is exploring. She is always on the move. Her tiny hands and feet are fluttering with activity, so much so...

Lam, Today, you will receive the test results you had been fearing. The words spoken by your Genetic Counsellor will crush you. Evalyn...