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Letters to Me: Dear Dannii
You just got some news that you semi expected but honestly weren’t ready for and were in a bit of denial about. So unlike you to look into what it could mean but this may have been your best step! You will move forward with grace and treat him as a kid first and his diagnosis is just something to contend with in a somewhat secondary capacity wherever you can. The thing you need to know, I’m 4 years into this wonderful “journey” that is mothering that beautiful boy you see bef

Ellen Huggins
Nov 12 min read


Letters to Me: Dear Robyn
Hey you, today's the day you will receive the dreaded phone call confirming the little life you are carrying does indeed have Down syndrome. To be honest you won't be shocked after all you are 43 and high risk. But your at work and your in your office alone, How will you process this info, your first thought will be *how will this baby fit in to family photos* I know it's a strange thought but it's the first thing to pop into your head. Your not sad, you won't grieve because

Ellen Huggins
Oct 302 min read


Letters to Me: Dear Peta
Peta my darling I want you to know I want to assure you that you will be okay. That moment your world was shattered and your life felt devastating. The fear of the unknown will challenge you, and it will change your life in many ways. However, you will be strong and able to do all the things you need to do. I understand that reading the ultrasound results and hiding them for three days until you could speak those words will cause trauma. However, you will be okay. The questi

Ellen Huggins
Oct 291 min read


Letters to Me: Dear Julie
I know right now you feel like the ground has shifted under your feet. The words you just heard, Down syndrome , sound heavier than you imagined even though you were expecting it. Your mind is spinning with questions. You begin to wonder if you are strong enough, if your child will be okay, if life will ever feel the same again. Breathe Julie. You are going to be okay. Darcy is going to be more than okay. The days ahead will not always be easy. You will encounter stares, unk

Ellen Huggins
Oct 282 min read


Letters to Me: Dear Kate
You have just received the call from the Dr. ‘The results are positive for Down Syndrome’ she says. You are 29 weeks pregnant and scared of what is to come. You can’t imagine your life anymore… I wish you knew then what I know now… I wish you knew that Charlie is a beautiful, sweet, inquisitive, kind and joyful little boy. He is now 4 and exploring the world in his own fiercely independent way. Charlie does everything on his own timeline and every hard-won milestone feels so

Ellen Huggins
Oct 272 min read


Letters to Me: Dear Ouma
My journey with Down syndrome has been one of beauty, acceptance, knowing, a small amount of sadness, and wonder, filled with a joy and love that is more precious than words can say. This is accompanied by a deep knowing that this is who Taya is meant to be. She is the gift that none of us knew that we needed. Her T21 birth did not come with surprise, despite not knowing prior, but with a knowing for my daughter and myself that we would be gifted with her. Deep down, we had b

Ellen Huggins
Oct 172 min read


Letters to Me: Dear Anna
My memories of what I went through 26 years ago giving birth to my lovely, adorable son Dylan. He was born on due date, 15 hours of labour nature birth. The only medical issue at birth was he was jaundice and put under lights for the first few hours after birth. At a later stage we found he had a hole in his heart that closed over six months later, two lots of pneumonia and three lots of grommets. As I couldn’t breast feed Dylan, he was bottled fed, so we were allowed to go

Ellen Huggins
Oct 162 min read


Letters to Me: Dear Sharna
It's one of the calls we all dread after receiving the news that you're pregnant, and you received it shortly after your 12 week...

Ellen Huggins
Oct 102 min read


Letters to Me: Dear Chris
Do you remember that moment when your wife, Gayle, discovered she was pregnant? Absolutely. We were both stunned — almost upset — and I...

Ellen Huggins
Oct 32 min read


Letters to Me: Dear Harley
You didn’t just survive. You transformed. I’m so incredibly proud of who we turn out to be.

Ellen Huggins
Oct 22 min read
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